The National Marrow Donor Program® (NMDP) (which operates Be The Match® and the Be The Match Registry®) and the Be The Match Foundation® (collectively referred to for the purposes of this Online Privacy Statement as "NMDP" or "we") are committed to respecting your privacy. The NMDP Web sites (JasonCarterClinicalTrialsProgram.org, BeTheMatch.org, Marrow.org and BeTheMatchClinical.org, or any subdomain thereof, collectively referred to here as the "Website") have been structured so you can visit them without revealing any personal information. If you choose to provide the NMDP with personally identifiable information (any information by which you can be identified), you can be assured it will be used only to support your relationship with the NMDP.
This statement regarding the privacy of the information you provide online covers seven main areas:
What We Collect: Web Statistics
As you browse through this website, the NMDP collects some non-personally identifiable data, such as:
- The type of browser used to access the site
- The date and time of your visit
- The pages you visited
- The address of the website that referred you if you clicked a link to get to this site
The NMDP collects this information for statistical purposes and for evaluating this website to make it more useful to visitors.
If you have signed up to receive information by e-mail from the National Marrow Donor Program, Be The Match® or Jason Carter Clinical Trials Program, the e-mail may contain a "click-through" URL. When you click one of these URLs, you pass through our Web server before arriving at the Web page that is your destination. We track click-throughs to help us determine your interest in particular topics and measure the effectiveness of our communications.
This Web site collects personally identifiable information only if you voluntarily submit it. The personal information collected on these pages is your name and contact information. In some cases, you may submit additional information as needed to complete your request.
We may also ask you to voluntarily provide us with information regarding your professional interests, demographics and contact preferences to tailor our subsequent communications with you and continuously improve our Web site and services.
If you no longer wish to receive email communications for the Jason Carter Clinical Trials Program Carter Clinical Trials Program, please email firstname.lastname@example.org with the subject line “unsubscribe.”
We use persistent cookies. A cookie is a small text file that contains no personally identifying information and that is placed into the memory of your browser. If the lifetime of the cookie extends beyond the time you spend at the site, the file is saved for future reference and is a “persistent cookie.”
Persistent cookies allow us to include capabilities that provide a better user experience, make the website easier to navigate, and allow us to gather accurate information about the site so we can determine: ul li How many visitors arrive li How many are new versus repeat visitors li How often a visitor has visited
How We Use It
When you choose to submit personally identifiable information to the NMDP, we use your information only for the purposes for which you submitted the information.
NMDP will not use or share the personally identifiable information provided to us online in ways unrelated to the ones described above without letting you know beforehand and offering you the opportunity to withhold your consent for NMDP to use your information in this way.
When you submit other requests, such as materials requests, the NMDP uses your name and contact information for the sole purpose of completing your request. If you request materials, your name and contact information are kept in a limited-access database and are not sold or given to any other organization outside of the NMDP Network of centers.
Who We Share It With
The NMDP will not sell, rent or lease your personally identifiable information to others.
Unless we have your permission or are required by law, any personal data you provide us online will be shared only with other NMDP entities and/or business partners who are acting on our behalf to complete the activities described above. Such NMDP entities and/or business partners, including those located in other countries, are required by agreement to protect the privacy of your personally identifiable information as set out in this Privacy Statement.
The NMDP will not use or share the personally identifiable information provided to us online in ways unrelated to the ones described above without letting you know beforehand and offering you the opportunity to withhold your consent for NMDP to use your information in this way.
The NMDP is committed to ensuring the security of your information. To prevent unauthorized access, maintain data accuracy and ensure the appropriate use of information, we have put in place appropriate physical, electronic and managerial procedures to safeguard and secure the information we collect online. This includes the use of Secure Socket Layer (SSL) software, which encrypts the information you submit to keep it secure during transmission.